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Margaret S (Maggierose), Possible Adrenal Bio

Hi I’m new to cushings and just looking for some insight into this disease. I’m 67 yrs and for the last 15 yrs I have not felt good and problems getting worse with no explanations in the past. After...

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TONIGHT! Interview with Fabiana

  Fabiana will be our guest in an interview on BlogTalk Radio  Wednesday, October 21 at 6:00 PM eastern.  The Call-In number for questions or comments is (657) 383-0416. The archived interview will be...

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Jane (Jane), Undiagnosed Bio

  Hi. I am retired RN in Oklahoma. I have undifferentiated connective tissue disease, chronic kidney disease and peripheral nerve disease in arms and legs. I had an autoimmune disease in 1972 called...

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Toni (Toni), Adrenal Bio

  Diagnosed with cushings syndrome, right adenoma. Reviewed right adrenalectomy after 3 years of being bounced from doctor to doctor. Diagnosed with high blood pressure, high cholesterol. Hair loss,...

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Fiona, Pituitary Bio

  Originally posted Wednesday, June 3, 2009 Well, I was first diagnosed in 1990 after a year of tests and years of symptoms which I put down to my age (early 20s!!). I had a TSA to remove the...

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Niamh (niamhiblog), Adrenal Bio

Full link to my blog: https://niamhiblog.wordpress.com/ I will never forget the day my hair loss went from “God, don’t I leave a lot of hair around the apartment” to “F***!!!! ”. I’d always considered...

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Emily, Undiagnosed Bio

  Hello, my name is Emily. A few months ago I was “diagnosed” with Cushings Syndrome as I had very high levels of cortisol. I was sent to a ENDO Dr. & most tests came back saying I have it. But...

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Melissa, Pituitary Bio

  From August 12, 2007 I am 32 yrs old. I started having sxs after my 3rd daughter. I started to have face numbness and weight gain after my hysterectomy in 2004. I have had depression since the birth...

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Matthew C, Pituitary Bio

Hello, I am retired from the United States Army and currently work as a dispatcher for the Blue Springs School District. A few years ago I started to have extreme anxiety. Of course, I went to a...

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Lisa (Lisa), Undiagnosed Bio

  44 yo female have been overweight for a while always fatigue, muscle aches, pain/joint all I related to weight only history is hypothyroid been on synthroid since 15ish recently had UTI that was...

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Elizabeth, Pituitary/Adrenal Bio

  Originally posted September 24, 2008 Hi my name is Elizabeth (Liz or Lisa). I am a 32 year old who has possible cushings. In October of 2005 I was diagnosised with an adrenal tumor on my left...

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Nicole, Undiagnosed Bio

My name is Nicole, currently 19 years old. I’m a student at The Juilliard School in New York studying Dance. I don’t know why it’s taken me so long to reach out to this community, I have certainly...

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Suzanne (Suzanna), Undiagnosed Bio

Hi all, Looking for some knowledge as I feel like my GP had been really unhelpful over this. So I went to see him for some infected bites a few weeks ago. It’s really difficult to get an appointment...

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Denise, In the Media

Cushing’s survivor hopes to make others aware of illness July 16, 2007 Denise Potter, who works at the Christus Schumpert Highland Hospital as a mammographer, has Cushing’s disease which affects the...

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Sheryl, Pituitary Bio

My journey started about 7 years ago. I began with generalized symptoms. I had severe insomnia, muscle and joint aches. I would be wired for a few days than couldnt get out of bed for days. The...

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In Memory of Natalie Fay ~ April 21, 2008

This is another Golden Oldie.  I’m not sure when it was last written or updated by Natalie but it was updated by me after she died April 21, 2008. ~~ Hi! My name is Natalie, I am 35 years old and I’ve...

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In Memory of Natalie Fay ~ April 21, 2008

This is another Golden Oldie.  I’m not sure when it was last written or updated by Natalie but it was updated by me after she died April 21, 2008. ~~ Hi! My name is Natalie, I am 35 years old and I’ve...

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Téra (HappyGirl), Video Bio

Téra is a member of the message boards – you can respond to her posts here. Dear endocrinologist, I need to say something for all the people like myself with endogenous mild episodic Cushings that are...

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Joanna, Undiagnosed Bio

Im a 41 year old female currently in the very beginning stages of testing. Im pending results of a 24 hour urine cortisol and will be completing the 1 mg dexamethasone suppression test shortly. My...

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She thought her weight gain was due to giving birth. She learned it was a tumor

Dr. Irmanie Hemphill, who first thought her weight gain was due to having a baby. Doctors at Cleveland Clinic Florida in Weston diagnosed her with a tumor in the pituitary gland in her brain. In the...

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